To: The United States House of Representatives
FDA- The DES Tragedy for Generations
Petitioning President Barack Obama
To the FDA- DES Daughters - A Lesson on a Pharmaceutical Fatal Mistake for the Generations
Bonnie Gillespie
United States
144
Supporters
Why aren't we asked on physical forms if "Were you exposed to DES"? This question could save a life! While researching symptoms of a Gyn nature I discovered the connection between DES exposure in the fetus. This lesson in a pharmaceuticals experiment must never be repeated. My mother, as millions others, were given this first-ever synthetic hormone when pregnant with me. It was mistakenly thought to prevent miscarriages but instead caused breast cancers in the mothers given the drug and cancers, infertility issues, and increase risks of several diseases in the daughters, sons and now grandchildren of those exposed. (Go to www.DESAction.org for more information) According to the NIH this drug is an example of a generational tragedy. Yet, to date, this exposure question has not been included on any physical forms. This must change as it may have alerted my doctor to be vigilant and aggressive to any change in my body. An estimated 5 million women were given this drug in pregnancy. Adding to that number are the affected children and grandchildren. Why is the ongoing tragedy of DES not kept in the spotlight? Not only have I been affected but my children and grandchildren. DES keeps giving from generation to generation to include males such as testicular cancer and male genital deformity. So women have your significant other or sons and grandsons made aware this is not only a women's health issue but males also. This must be on all physical questionnaires as diabetes or high blood pressure etc is asked. Now be proactive to educate as knowledge is power. I will not be silenced but need many to speak. Bonnie
To the FDA- DES Daughters - A Lesson on a Pharmaceutical Fatal Mistake for the Generations
Bonnie Gillespie
United States
144
Supporters
Why aren't we asked on physical forms if "Were you exposed to DES"? This question could save a life! While researching symptoms of a Gyn nature I discovered the connection between DES exposure in the fetus. This lesson in a pharmaceuticals experiment must never be repeated. My mother, as millions others, were given this first-ever synthetic hormone when pregnant with me. It was mistakenly thought to prevent miscarriages but instead caused breast cancers in the mothers given the drug and cancers, infertility issues, and increase risks of several diseases in the daughters, sons and now grandchildren of those exposed. (Go to www.DESAction.org for more information) According to the NIH this drug is an example of a generational tragedy. Yet, to date, this exposure question has not been included on any physical forms. This must change as it may have alerted my doctor to be vigilant and aggressive to any change in my body. An estimated 5 million women were given this drug in pregnancy. Adding to that number are the affected children and grandchildren. Why is the ongoing tragedy of DES not kept in the spotlight? Not only have I been affected but my children and grandchildren. DES keeps giving from generation to generation to include males such as testicular cancer and male genital deformity. So women have your significant other or sons and grandsons made aware this is not only a women's health issue but males also. This must be on all physical questionnaires as diabetes or high blood pressure etc is asked. Now be proactive to educate as knowledge is power. I will not be silenced but need many to speak. Bonnie
Why is this important?
DES was banned in 1971 but not before over 5 million people were exposed. This drug was used to prevent miscarriage or infertility. This question 'Were you exposed to DES' on patient intake forms should be asked as high blood pressure or diabetes is, It may save a life.