To: President Donald Trump, The United States House of Representatives, and The United States Senate
Federal Bill - Simon's Law
We support a federal bill similar to Missouri's HB 1915 - Simon's Law to protect parental rights to make life-sustaining medical decisions on behalf of their minor child. No hospital/medical professional should have the power to decide whether or not a child's life has value and should be required to inform the parent(s), in writing, of any "futility" policy that may limit care for any reason. Only the parent(s) should have the final decision, whether or not to terminate life-sustaining measures (including feedings) regarding their minor children.
Why is this important?
Simon was a living, breathing human being, who brought incredible joy to his family…he did NOT deserve to die.
On September 7, 2010, Simon was born with a bilateral cleft lip. 3 days later, he was officially diagnosed with “Full Trisomy 18,” also known as Edward’s syndrome. His parents wanted Simon to have every opportunity to thrive and survive.
Someone else decided Simon’s life didn’t have value. Care was withheld. Simon was given only "comfort feedings" which basically means he was slowly starving to death. A Do-Not-Resusitate (DNR) order was placed in his chart, without his parents' knowledge or consent. Ultimately, his parents wishes and cries for help were ignored.
We want to make sure this doesn’t happen to another child. In our opinion, no one loves their child more than their parent and only the parents should have the right to make those life or death decisions.
Simon’s Law will protect the rights of parents concerning any life-sustaining medical choices for their minor children. So if your child suffers life threatening injuries only you, as their parents, would have the right to make those decisions regarding life or death instead of a medical professional, a stranger, you just met for the first time.
We are asking you to please support Federal Bill similar to Missouri's HB 1915 - Simon’s Law.
After all, shouldn’t every child have the opportunity to thrive and survive?
On September 7, 2010, Simon was born with a bilateral cleft lip. 3 days later, he was officially diagnosed with “Full Trisomy 18,” also known as Edward’s syndrome. His parents wanted Simon to have every opportunity to thrive and survive.
Someone else decided Simon’s life didn’t have value. Care was withheld. Simon was given only "comfort feedings" which basically means he was slowly starving to death. A Do-Not-Resusitate (DNR) order was placed in his chart, without his parents' knowledge or consent. Ultimately, his parents wishes and cries for help were ignored.
We want to make sure this doesn’t happen to another child. In our opinion, no one loves their child more than their parent and only the parents should have the right to make those life or death decisions.
Simon’s Law will protect the rights of parents concerning any life-sustaining medical choices for their minor children. So if your child suffers life threatening injuries only you, as their parents, would have the right to make those decisions regarding life or death instead of a medical professional, a stranger, you just met for the first time.
We are asking you to please support Federal Bill similar to Missouri's HB 1915 - Simon’s Law.
After all, shouldn’t every child have the opportunity to thrive and survive?