To: The Virginia State Senate
Life neccessary treatments being denied
I am a Myasthenia Gravis fighter. I started Solaris infusions a little over a year ago. They have drastically improved my condition. A few months ago, my neuromuscular specialist began his own private practice and wasn't in Humana's network. I was denied my infusions for 6 weeks and after various attempts of getting overrides with Humana for authorizations. There were nearly no other doctors who wanted to handle CNN my case because it was "so complicated" and there are not many neuromuscular specialists in my area who are authorized to provide Soliris infusions. In the meantime, I was going into a crisis. Once these infusions are started, you can't stop them. I am starting this petition for better alternate health options to have medications that are life-threatening.
Why is this important?
So others who are in risk of going into a crisis with Myasthenia Gravis or any other critical illness can be provided with better options in order to save their lives. Yes, I am a 26-year survival of MG.