To: President Donald Trump, The United States House of Representatives, and The United States Senate
Medical Research into Hidradenitis Suppurativa.
Hidradenitis Suppurativa is a disease affecting millions of people, yet little or no current research is being done in the areas of treatment, long-term care or a cure.
Our organization would like to respectfully request funding earmarked for Medical Research into Hidradenitis Suppurativa.
HS is an inflammatory skin disease that affects an estimated 1% of the population.
The main features of HS include painful and chronically recurring, deep-seated follicular nodules, papules, pustules and abscesses, scarring, sinus tracts and recurrent discharge. The areas most commonly affected are under the arms, groin, buttocks, and under the breasts.
The disease is variable and recurrent. It may present with solitary or multiple lesions in one area, with lesions in many areas, or in more severe cases may have large areas of skin affected by recurrent, draining lesions that are very difficult to heal.
Past medical research details a disease in which the time taken to diagnose is measured in years or even decades, and is often undiagnosed or misdiagnosed. These issues compound the high morbidity and disabling nature of the disease. Therefore there is an urgent need for detailed investigations into the nature of Hidradenitis Suppurativa.
Our organization would like to respectfully request funding earmarked for Medical Research into Hidradenitis Suppurativa.
HS is an inflammatory skin disease that affects an estimated 1% of the population.
The main features of HS include painful and chronically recurring, deep-seated follicular nodules, papules, pustules and abscesses, scarring, sinus tracts and recurrent discharge. The areas most commonly affected are under the arms, groin, buttocks, and under the breasts.
The disease is variable and recurrent. It may present with solitary or multiple lesions in one area, with lesions in many areas, or in more severe cases may have large areas of skin affected by recurrent, draining lesions that are very difficult to heal.
Past medical research details a disease in which the time taken to diagnose is measured in years or even decades, and is often undiagnosed or misdiagnosed. These issues compound the high morbidity and disabling nature of the disease. Therefore there is an urgent need for detailed investigations into the nature of Hidradenitis Suppurativa.
Why is this important?
Hidradenitis Suppurativa is a disease affecting millions of people, yet little or no current research is being done in the areas of treatment, long-term care or a cure.