To: The Nevada State House, The Nevada State Senate, and Governor Steve Sisolak
PKU Formula Coverage
Since moving to Nevada, we have zero coverage (even with high dollar health insurance) for Trevor’s formula that he needs to live a normal life. The state of Nevada has no insurance laws requiring private insurance companies to cover metabolic formulas.
Why is this important?
Trevor needs this formula to live a normal life. There is absolutely no way for him to function, work or otherwise enjoy his life without it. We have fought this and fought this and made zero ground with insurance companies because there is no state law requiring them to provide coverage. The cost of formula out of pocket with no coverage is more than most people’s mortgage and it’s so unjust that something just as necessary as insulin for a diabetic is putting such a stress on our life. The PKU law in Nevada has not been updated since 1997 and it is very very necessary that it be revisited. As newer Nevada residents, it’s very discouraging that we can’t get coverage on something so life-altering. We are very hardworking people and it is outrageous that the amount we pay for health insurance doesn’t include the cost of formula. PLEASE HELP!