SAY YES to Medical Research Cavernous Angioma Bill 2013 and SAVE LIVES!

Cavernous Angioma Bill 2013 House Version called H.R. 2521 and Senate Version called S.1223 is now before them. I have been waiting 14 years for this to occur! I have Multiple Cavernoma Syndrome, It is a rare disease and I have been thru 19 surgeries fighting for my life. I know at least with all I have been thru, I have had brilliant research scientist working endlessly trying to find a cure with all the tumors they have taken from me. I have recently had brain surgery and spinal cord surgery and worked extremely hard to walk again, even though I was told I would NOT.... Unfortunately, last month I was told I have new tumors right above the old location in my spine and more in pons, my risks are very high of being paralyzed from the neck down or the chest down from either new cavernoma....I will NOT sit and worry about this.. NO! I will get into fight mode, like usual. I will focus on the AMAZING news..... The researchers have a new medication that by the end of THIS YEAR ...YES THIS YEAR!! IF funding continues and once they receive FDA approval .... I will be one of the first Humans to be tested with this medication....scary yes, but I have hope, because this is showing amazing promise and it does not only STOP the growth of the original cavernoma, but PREVENT new ones from forming!!! THIS MEANS A CURE!!!!!!! this means a NEW GIFT OF LIFE for all of us suffering with this disease!!!! Please go to the link posted http://www.angiomaalliance.org/pages.aspx?content=399#.Ud3ChrHWees.facebook