To: President Donald Trump
Sickle Cell Health Care Petition
Healthcare is a right, not a privilege. This is not the case for most people who suffer from Sickle Cell Disease. The Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act must be signed into law.
Prejudice and discrimination towards patient of sickle cell disease exist in the medical field. People who suffer of sickle cell disease suffer injustice when it comes to seeking medical attention. Their pain is undermined and care is often times neglected or delayed. These patients are left to suffer the painful symptoms that come with such a detrimental disease. It is unacceptable that healthcare providers are only taught about sickle cell in less than 20 minutes. Currently, there is not enough attention in gathering data for people with sickle cell. Often the transition from pediatric to adult healthcare is difficult for people with SCD. The Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act will collect and maintain data for sickle which will improve national data, identify health disparities and other factors that affect the health of the individuals.
People with sickle cell disease have suffered long enough. Action needs to be taken now to make sure that they are cared for and that there is available resources to ease the pain from this disease.
Prejudice and discrimination towards patient of sickle cell disease exist in the medical field. People who suffer of sickle cell disease suffer injustice when it comes to seeking medical attention. Their pain is undermined and care is often times neglected or delayed. These patients are left to suffer the painful symptoms that come with such a detrimental disease. It is unacceptable that healthcare providers are only taught about sickle cell in less than 20 minutes. Currently, there is not enough attention in gathering data for people with sickle cell. Often the transition from pediatric to adult healthcare is difficult for people with SCD. The Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act will collect and maintain data for sickle which will improve national data, identify health disparities and other factors that affect the health of the individuals.
People with sickle cell disease have suffered long enough. Action needs to be taken now to make sure that they are cared for and that there is available resources to ease the pain from this disease.
Why is this important?
After researching for our Group IV projects we learned that sickle cell disease affects about 100,000 Americans, it is the most common blood inherited disease. It is a disease full of stigmas that cause unfair treatment and lack of funding for sickle cell disease. This needs to change because after 100 years of discovering" SCD much needed attention is not happening.