Stevens-Johnson Syndrome Awareness Month

My son Christopher was only 9 months old when he was diagnosed with SJS. He endured so much pain at such a young age. At first it started out with fevers & rashes than he began to get blisters inside & outside of his body. He had to be quarantined because the doctors couldn't figure out what he had. He was unable to eat on his own, so the doctors had to give him a TPN which is an iv that feeds the body nutrient fluids through the vein in order to survive without eating solid food. He was unable to move & was in constant pain. As a mother it broke my heart to see my infant son go through this & there was absolutely nothing I could do to ease his pain or make him well again. By the grace of God & the Doctors who have dedicated themselves to help my son, he was one of the fortunate ones that survived SJS. He has not had another SJS breakout since & is a normal healthy 8 yr old boy. Please make August Stevens-Johnson Syndrome Awareness month so we help educate others on SJS & catch symptoms early enough to save lives.