Once you receive an organ transplant, the necessary anti rejection drugs cost thousands of dollars per month. The copays are so expensive, it forces many to live in poverty to pay the expense while on SSDI and low income employment.
Why is this important?
Organ transplant medication costs are very expensive, in the thousands of dollars per month. I have had a heart transplant and the costs of the medications in copay on medicare is around 1/3 of my SSDI check. Yet, the rules are such that I cannot receive "extra help" for medication costs. The rules are income limit only, without regard to actual copay costs. Also, cannot receive any forms of assistance due to the same rules. Many times I have had to choose which meds to take and how much food I can eat, just to stay alive. This is wrong. Transplant costs are astronomical, yet once transplanted, there is not a system in place to insure patients receive the life saving anti rejection meds.
