Being a mother with a rare disease warrior - his way to a diagnosis was through genetic testing which would've been over 4,000$ if we didn’t find a foundation.. So many families are suffering or dying due to the hands of insurance denials , lack of funds and poor healthcare decisions because they don’t have access to genetic testing or they have to wait years even thought symptoms can present at birth. It is my mission to make FREE MANDATORY genetic testing at BIRTH for ALL NEWBORNS.
Why is this important?
It will help ease suffering to many families, provide more research opportunities, and give newborns / kids a chance to thrive even with a rare illness or genetic disorder
