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To: Chairman Cuomo and the National Governors Association

Tell US Governors to stop ignoring vulnerable Americans in Vaccine Rollout Plans.

Tell the National Governors Association to stop ignoring Americans with underlying conditions and disabilities in states' vaccine rollout plans.

Millions of Americans across the country have been left off the eligibility list by thirty states in phase 1C of the COVID-19 Vaccine Rollout. Governors across the country have broken their promises. They have ignored vulnerable Americans, meaning vulnerable Americans have to continue to fear the risk of bad outcomes or death from COVID-19. Many of these vulnerable Americans are our neighbors, friends, and family members who have underlying conditions and disabilities.

Despite calls from national disability groups about these vulnerable populations’ high risk of worst outcomes from COVID-19, the National Governors Association and Governors across America continue to ignore the lives of vulnerable and disabled Americans.

Sign our petition to tell the National Governors Association to stop ignoring vulnerable and disabled Americans and demand equity in COVID-19 state public health plans. Re-prioritize them for vaccination in the thirty states that have de-prioritized them by including them in Phase 1C.

Why is this important?

There is a reason the Center for Disease Control made the guidance for Phase 1C of the COVID-19 vaccine roll out to include people aged 16 - 64 years with underlying medical conditions and disabilities, which increase the risk of serious, life-threatening complications and death from COVID-19.

However and despite this guidance, in recent weeks thirty states de-prioritized these people in COVID-19 vaccine distribution in the name of efficiency and equity.

It is common sense to prioritize vulnerable Americans. In the past twelve months, over half of a million people have died from COVID-19 in the United States.

94% of these were Americans with comorbidities.

The guidance is not just that of the Center for Disease Control.

An analysis by FAIR Health, in collaboration with the West Health Institute and Johns Hopkins' Marty Makary, found that COVID-19 patients with developmental disorders are the most at risk of dying, followed by those with lung cancer and intellectual disabilities, regardless of age.

And now, recent studies from leading immunologists in Boston show mutations are incubated in autoimmune disease patients, creating strains that are sometimes undetectable to testing and impervious to current COVID-19 treatments.

Studies from John Hopkins found that people in their 20s, 30s, and 40s can catch the virus. Some develop severe and lasting symptoms, particularly if they have comorbidities or underlying conditions (such as obesity, diabetes, or high blood pressure (hypertension)). Data from one study shows that of more than 3,000 adults ages 18 to 34 who contracted COVID-19 and became sick enough to require hospital care, 21% ended up in intensive care, 10% were placed on a breathing machine, and 2.7% died. The majority of these patients had comorbidities. This in-hospital mortality rate is lower than that reported for older adults with COVID-19, but approximately double that of young adults with acute myocardial infarction.

And the data is there in other parts of the world—the United Kingdom recently announced that sixty percent of their COVID-19 deaths were those with disabilities. In Australia, disabled people are five times more likely to die. Unlike the UK and AU, the United States does not collect data the same way it collects data on race or gender identity, meaning the 94% could be a low figure.

Unfortunately, the majority of state vaccine rollout plans are based on state data. However, many states do not track numerous underlying conditions and disabilities within their health departments as they do other demographics such as race, age, and gender. But we know now that these are individuals at risk for bad outcomes and death from COVID-19; second to age is an underlying condition and disability such as developmental disabilities.

To make matters worse, “disability activists, chronic illness advocates, and people with disabilities and underlying conditions have pointed to three main failures in inequitable vaccine rollouts: eligibility lists that do not include all those who are considered high risk; states that have not prioritized people with disabilities; and websites or vaccination sites that are not accessible, as author Cecilia Nowell wrote in her article "This women-made tool could help get more disabled people vaccinated" in The Lily.

We implore the National Governors Association to re-prioritize those in thirty states who are vulnerable and have a disability. We demand vulnerable and disabled people are included in phase 1C of ALL states' vaccine rollouts, that vaccine sign-up and sites are accessible, and that states provide a choice of vaccines to those with conditions or disabilities who require choice due to their unique medical needs.

Sign our petition to tell the National Governors Association to stop ignoring the vulnerable and disabled Americans and demand equity in COVID-19 state public health plans. Re-prioritize them for vaccination in the thirty states that have de-prioritized them by including them in Phase 1C.

We will update you on our upcoming letter to the National Governors Association that will include this petition and other actions you can take as the campaign develops. Please stay tuned.

Sincerely,
Vulnerable Advocates Collective
https://bit.ly/vacpact

The Vulnerable Advocates Collective, or VAC Pact, is a group of activists dedicated to amplifying the voices of the vulnerable people and disabled people erased from the equity conversation.

Full Plain Text Petition with Works Cited:
https://docs.google.com/document/d/1Bma65ujyZAygUQcJ11ZEtHDi1Soh7Wc9_zKJtmT8J4M/edit?usp=sharing

How it will be delivered

We will deliver the petition safely via email, as members of the collective are at high risk severe disease and must avoid exposure as much as possible, particularly while unvaccinated.

Links

Updates

2021-03-09 20:08:42 -0500

100 signatures reached

2021-03-09 15:39:04 -0500

50 signatures reached

2021-03-08 15:58:26 -0500

25 signatures reached

2021-03-08 10:59:22 -0500

10 signatures reached