My daughter Jasmine Wharton age two fights for her life every day because she wasn't screened for this disease because it is NOT on the Newborn screening in Michigan. Even if a baby had it they would detect it early and do a cbt (cord vlood transplant or a bmt (bone marrow transplant) showing very good results to those that are dected early enough to recieve treatment. PLEASE help make it Jassy's Law By helping out and signing this petition so no other child or parents have to go through this horrible disease!

I am new to Krabbes. Someone my father knows her granddaughter just passed away this jan 2014. Evalina Gonzalez was 2 years old and suffered so much. Even when they took her off life support she gave her best and lived three weeks more over the holidays. Evalina tried so why cant we in her memory. A young single mother at 23 shouldnt have to be alone fighting for her daughter when they have no cure. A simple test could have given her daughter a chance to live with less complications. This is a reason why we need to use our voice and speak on behalf of those who are no longer here. With your help make this possible. Dont be the next person left to fight for your child alone.

An arcane Texas law allowed John Peter Smith Hospital to override a family's decision to remove a brain-dead woman from life support––because she was 14 weeks pregnant. After months of struggling with Texas courts and the hospital to respect her predetermined wishes, the family was finally able to put the mother and unborn fetus to rest––ending the torment this family has endured. But this hellish nightmare isn’t over. The grieving husband has begun to receive medical bills for his wife’s unwanted and contentious treatment. Overzealous sanctity of life laws to protect unborn children have forced the living members of this family-father and young son–to endure emotional stress and now financial hardship. Sign the petition demanding that this family not be held accountable for medical bills the state and hospital racked up––urge them to foot the bill and address this law immediately.

Last month, Bayer CEO Marijn Dekkers was discussing Bayer’s new cancer-fighting drug, Nexavar, at a conference hosted by the Financial Times. Nexavar costs a scandalous $69,000 for an annual supply, and India’s patent court has taken action to make the drug available for a price that India’s people can afford. When Dekkers was asked about India’s decision his response was: “Is this going to have a big effect on our business model? No, because we did not develop this product for the Indian market, let’s be honest. We developed this product for Western patients who can afford this product, quite honestly." Join us in sending a message to Bayer and Marijn Dekker that their racist policies and corporate class warfare will not be tolerated: it's time to fire Marijn Dekker and make cancer-fighting medication affordable to those who need it.

In Massachusetts, three insurance companies have a combined market share of nearly 70% of the health insurance market. Having a meaningful number of options available to Massachusetts families is a necessary component of a health care system that can control costs. Having a public option would give Massachusetts families more choices. In addition, a public plan could operate without excessive administrative and marketing costs, high executive salaries or a need to generate profits. As a result, a public option could provide a good deal for consumers and keep pressure on private insurers to keep their policies affordable and treat their customers well by acting as a benchmark for affordability and quality of care. As proud as I am of the progress we've made in Massachusetts on health care, we still have a ways to go. Establishing a public option is one more step we can take to make sure that every resident has access to the best possible health care in the Commonwealth.

I believe in the civil freedom to choose my medicine. I have seen many patients quality of life improve from cannabis, and bring them peace before they have passed on. Conventional pharmaceuticals are not right for everyone, so everyone should not be forced to use what is not best for them as medicine because it is accepted as a social norm. I believe cannabis is a much more healthy and less expensive health care option for many, and should be readily available while our legislature makes up their minds of what to do with patients now that I-502 has began implementation so patients do not have to suffer and potentially die in the mean time.

Clinical trial of investigational new drugs are an essential part of the process through which vitally needed new medicines reach the market. While rules assuring patient safety are in place through the Food and Drug Administration, the Office of Human Research Protections and participating Clinical Trial institutions, compliance varies. An Independent Patient Advocate would provide a needed communications conduit and meaningful oversight of Patient safety. Despite an FDA Guidance for Clinical Trial Sponsors that recommends inclusion of patients in Data Monitoring Committees, there is no required Patient involvement or oversight in monitoring the conduct of a clinical trial. There is no conduit for Patients to express concerns over care beyond their attending healthcare professionals. Patients are routinely excluded from knowledge of their own clinical trials, including knowledge of unanticipated adverse events. As Patients in clinical trial, we need to know that our health concerns will be heard and that all SAEs will be reported to us promptly and the risk assessment conveyed to us as quickly as possible, Only when we are fully informed can we provide meaningful informed consent to participate in the Clinical Trial protocol.

We, the members of the Zumba class with Marisa Tournear and Janice Winn at Quincy University's Health and Fitness Center feel that our class has been cancelled abruptly without good reason. We have been told that the reason is dwindling numbers in attendance, which is definitely not the case. Some of us have been attending regularly for the past 4 years. Zumba is more than a trip to the gym for us; we have become a family. We refuse to settle for this cancellation, and want our class to be reinstated.

Sign using the form on the left if you think Utah citizens should be able to vote on non-economic pain and suffering settlement limits instead of leaving the decision up to wealthy lobbyists, insurance agencies, and doctors! What if Utah law said your income could only be $20,000 per year for the rest of your working life? You’d be stuck bringing in only a third of what most other Utah households earn, according to the U.S. Census Bureau. You’d also be unable to buy a house, afford to live in a decent housing complex, or even qualify for many of the necessary steps to achieving the American dream. Here’s the scary truth: all of these things could happen to almost anyone at any time, and it’s due to a law you probably don’t know exists. My dad’s story is tragic proof of this. One year ago, my dad went in for a routine medical procedure. While current legal proceedings prevent me from going into detail, what I can say is that my dad has lost 90% of his feeling in his left leg and is no longer able to work. Unfortunately, a law went into effect without ever being on a ballot that says the limit for a malpractice settlement in the state of Utah is $450,000 for pain and suffering. That sounds like a lot, but think about it: my dad has 20 years of work left. If he could go to work and earn just $50,000 per year (still below the average), he’d make almost $1 million before he retired. Instead, even though my dad can no longer go fishing with his sons, go to work, take a jog, or even walk normally ever again, the state of Utah’s lobbyists decided – without voter knowledge or consent – all of pain was only worth less than $20,000 per year. And it’s all due to a law that never even went public. This $450,000 limit doesn’t just affect the middle-aged, either. If a child – even a baby – is a victim of malpractice, the family can still only be awarded $450,000 in damages. If that baby lives to be 50, that’s only $9,000 per year! I personally believe it’s not enough, and this cap should be changed based on the severity of each case and life expectancy of the victim. However, I’m not asking for this petition to change the law; I’m simply asking for the right as a citizen to vote on whether this law represents what I want as a tax-paying member of society. Had it been brought to the public prior to being passed the outcome of this law might have been different. Since this could affect any of us, don’t we deserve to have at least a vote? Please sign this petition so Utah voters can vote on Utah’s non-economic “pain and suffering” cap during our next election.

My son and I are hardworking Tennesseans as well, and we are committed entrepreneurs with an upstart business. We simply cannot afford healthcare at the moment. Just recently I got a piece of sawdust in my eye, and "man" it was in there deep. I was in extreme discomfort, but I knew an emergency room visit of $1000.00 was out of the question. So I had to lay in the floor while my son dug out the wood splinters. I am a grown man with a high tolerance for pain, but please consider for a minute that not everyone has helping family members in times of need and ask yourself what is the right thing to do. Medicaid expansion.

At least 400,00 citizens in Virginia have to make more than hard choices which normally means no health care. I saw them for years as a pharmacist. Not only that hospitals that serve many of these patients and had millions of tax dollars invested in them will know lost millions for nothing but ideology.

DO NOT TAKE AWAY TRICARE PRIME RIGHTS TO ANY RETIREES Our military retirees have all worked hard and served 20 or more years for their country lets not abandon them now by taking away their rights to TriCare Prime. Many retirees military families served in the military with the promise that they would have these benefits for their families after being retired. It is un just to take away these benefits for any retirees! CBO Studies Removing Retirees from Tricare Prime Military.comJan 21, 2014 | by Richard Sisk Barring working-age military retirees from TRICARE Prime would be the most cost-effective way of slowing the growth of Defense Department health care expenses that have jumped 130 percent from 2000-2012, according to a Congressional Budget Office analysis. The non-partisan CBO explored various options to include changing the eligibility for TRICARE Prime which would produce the biggest savings in the Pentagon's health care budget -- nearly $90 billion over 10 years, the CBO report estimated. The CBO analysis, released last week, was prepared at the request of Rep. Paul Ryan, R-Wis., chairman of the House Budget Committee. Current health care costs for DoD amount to about $52 billion annually, the CBO said, and only a formula involving increased cost-sharing for retirees who use TRICARE "has the potential to generate significant savings for DoD," the CBO said. All other approaches, such as better management and eliminating waste, "would not address the primary drivers of health care costs for DoD," the CBO said. The biggest savings would come from changes in current programs to "make working-age retirees and their families ineligible for TRICARE Prime, the most costly program for DoD, but allow them to continue using other TRICARE plans after paying an annual fee," the CBO said. "Shifting current cost-sharing arrangements so that beneficiaries pay a greater percentage of their health care costs would reduce DoD's spending significantly, primarily by encouraging people to leave TRICARE in favor of other providers," the CBO said. "It also would encourage those who continued to participate in TRICARE to use fewer services." The proposed TRICARE changes were expected to generate major opposition from veterans service organizations. Joe Davis, a spokesman for the Veterans of Foreign Wars, questioned the CBO numbers but said the report following on other major program initiatives advocated by DoD indicated that "the Pentagon is opening up a new front in the war on retirees. This is a threat to the all-volunteer force," Davis said. The VFW and other service organizations are currently battling cuts to the cost-of-living adjustment for working-age military retirees under the Bipartisan Budget Act of 2013 worked out by Ryan and Sen. Patty Murray, D-Wash. RELATED TOPICS TRICARE Richard Sisk